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Myself and Son Brady

This amazing boy lights up my life and gives me the strength I need to get through anything.



This is Me …..

Diagnosed at 4 months of age with Cystic Fibrosis and recently diagnosed (May 2017) with Breast Cancer. Strong willed, determined and positive outlook on life!



Myself and Hubby Brett

This amazing man is my world! He encourages my determination and strength and without him by my side I would be lost.

CF Plus One!

Plus one, you ask?

Having been diagnosed with Cystic Fibrosis from an early age it was without a doubt that I would use this page/blog to raise awareness, share my story, thoughts, feelings on living with a terminal illness.

Plus one references to that unexpected guest that your friend might bring along to a party, or that just pops up in your life.  So in this I refer to my most recent diagnosis being the plus one in my life!

With this blog  I am hoping to be able to give a personal experience of what it is like to deal with two life threatening illnesses.  Having Cystic Fibrosis and Breast Cancer is certainly rare. At present my diagnoses has not been seen by treating physicians or surgeons spoken to in Tasmania. It could possibly mean I am the first to be diagnosed in Tasmania and that may extend to Australia (I’ve used google and not been able to find anything or anyone who has reported both as a diagnoses). With this I am hoping to reach out or find others and to share in their personal experiences also. It would be right to assume that the Cystic Fibrosis population is now getting older and with age comes other medical problems so we may see more of these occurrences  (I know when I was originally diagnosed with CF my life expectancy was 10years of age, the general life expectancy has now increased dramatically to average of 37, In saying that it is very exciting that there are many patients out there much older).

So please be patient as I start this journey as all of this is very new to me! and I’m not talking the cancer part ( I have never operated a website/blog or anything to do with the internet my skills are limited and may show!)

 

Just to reiterate I may  at times reference to medical terms/information given to me or experienced.  I am by no means a doctor or have any medical background (although I do believe CF gives me quite a lot of experience!). Please do not take anything that I write as medical advice and should only be viewed as my own experience. If you require medical help please contact a medical professional.

 

Mon Neb